Shannon Sullivan

Executive Director

Shannon Sullivan joined HLC as Executive Director in June 2022, after 5 years volunteering with the organization. She has a history working with a wide-range of diverse and vulnerable populations across the hospital and healthcare industry. Her initial years in ALS began with the Muscular Dystrophy Association, as a Care Services Coordinator. Two years later, she began working for the ALS Association, MA Chapter, providing case management and services to families in Central and Western Massachusetts. For the past 4 years, she served as the Care Services Manager. Under Shannon’s leadership, the agency’s Care Services Team has grown to serve hundreds of families across the commonwealth, while providing a suite of support services that totals over $375,000 each year.

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Cara Haggerty

Program Director 

Cara Haggerty is a graduate of The College of New Jersey with a Bachelor's Degree in English and minors in Marketing and Psychology. She joined the HLC team soon after watching a friend lose a loved one to ALS. She lives in Princeton, NJ and is proud to be a part of the HLC Team.

Michella Larch

Communications & Fundraising Specialist

Michella Larch is a multimedia communications expert, with more than eleven years of experience as an Emmy nominated news reporter, anchor, and producer. She is a graduate of Virginia Tech with a Bachelor's Degree in Communications. She joined the HLC team in April, 2022 to make a difference in the lives of kids who have or had a parent with ALS, and to share their inspiring stories.

Board of Directors


Gary Bachrach


Gary is Executive Director of Business Development at The Joint Commission, the nation's oldest and largest accrediting body in healthcare. Gary’s first hands-on experience with Hope Loves Company was volunteering with his family at the first Chicago area Camp HLC in September 2019. Since then, Gary has worked to support the mission, raising awareness, fundraising, recruiting new Board Members and most recently serving as Vice President of the Board. Gary was elected President of the Board in November 2021, where he looks to lead the organization in its mission to serve as many families as possible impacted by ALS.

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Richard Sperry

Vice President

Mr. Sperry is Vice President, Executive Office at Novo Nordisk Inc. He serves as chief-of-staff to the Executive Vice President North America Operations and President of Novo Nordisk Inc. and leads key enterprise-wide strategic and operational initiatives. Mr. Sperry has over 18 years of experience in the pharmaceutical and medical device industry. He has worked in both the U.S. affiliate and in Novo Nordisk’s Region Europe headquarters in Zurich, Switzerland. He holds a bachelor’s degree in History from Georgetown University, an MBA from Columbia Business School, and a Certificate of Professional Development from The  Wharton School of the University of Pennsylvania. He resides in Pennington, NJ with his wife Maria and their three daughters.


Phil Calamia

Vice President

Phil is an independent consultant and brings a wealth of experience with him having been involved with technology organizations ranging from start-up to publicly traded companies throughout his career.  Phil has extensive experience helping Boards, Investors and management teams navigate through transitions while determining and achieving desired results including raising capital, initial public offerings and numerous acquisitions and divestitures.


Paul Grote


Paul Grote is a graduate of Seton Hall University with a Bachelor of Science degree in Accounting and is a retired Certified Public Accountant in New Jersey. He has over 40 years of accounting experience as a Manager, Controller and Director of Finance, mostly in non-profit accounting.  Paul hopes that his accounting expertise will assist HLC in continuing its growth and its ongoing ability to meet its mission to provide services to the ALS community.

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Mackenzie Anderson



Mackenzie is a Human Capital Analyst at Deloitte Consulting, in which she primarily serves Health Care and Life Sciences clients. Her relationship with HLC began in 2014 when her mom was diagnosed with ALS during her junior year of high school. Since then, Mackenzie has dedicated herself to serving HLC through international advocacy, fundraising, and serving on the Board of Directors. She holds a bachelor's degree in Corporate Innovation and Entrepreneurship and a minor in Labor and Employment Relations from the Pennsylvania State University. Mackenzie lives in Attleboro, MA with her boyfriend, Justin, and their Labrador Retriever puppy, Winston.


Dr. Michael Palmer, PHD

Board Member

Dr. Palmer is the director of Healthmark Counseling, LLC; a private outpatient mental health practice in Cinnaminson, New Jersey. Dr. Palmer is a lecturer, consultant, and is a member of the NJ Dept. of Children and Families strategic planning committee to prevent domestic violence. He hopes to contribute to the growth and expansion of HLC and its mission.


Linda A. Osman, Esq.

Board Member


Linda A. Osman, Esq. is an attorney with a private practice in Chesterfield, NJ since 1994. A general practitioner, she represents clients in real estate (commercial and residential), family law, estate matters, corporate, landlord/ tenant, land use, municipal court and more. She is hopeful this diverse background enables her to assist HLC achieve its goals.

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Sara Cooper

Board Member

1962 - 2021

Founder of Cooper Creative Group, Sara was a project management and marketing professional who was deeply committed to her community. She enthusiastically served on non-profit boards & committees in various capacities with a focus on fundraising, marketing/public relations and governance. Sara's mission and memory lives on through the Sara E.K. Cooper Scholarship for youth affected by ALS.


Craig and Kristen Colby

Board Members

Craig and Kristen Colby join Hope Loves Company from Delaware! They've met with all the elected officials of their State, making ALS a top priority for Delaware.  They've been part of the ALS community for the last 11 years. Craig was diagnosed in 2008 after 14 months of diagnosis.  They've been fighting for ALS warriors and their families since! In 2017 Craig started his scholarship for children affected by ALS.  


Jennifer Mizzone

Board Member

Jen Mizzone is a parent and lost her late husband, Mike, to ALS. Jen and Mike's story was featured in the documentary, Prescription for Peace of Mind: An Option for the Terminally Ill, which you can watch here.


Tracey Vasile 

Board Member

Tracey is the Vice President of Client Engagement at Verisk Analytics in Foxboro, MA, where she lives. She was a close friend and dedicated caregiver to the late Susan Anderson and learned first hand the effect that ALS has on an entire family during that life-changing experience.


Diane Smith

Board Member

Diane has over 30 years of global Human Resources executive leadership experience.  She has been responsible for all facets of human resources. She has industry knowledge and experience in health care, banking, manufacturing and cybersecurity. Diane holds a Bachelor of Science degree in Business with a concentration in Human Resources Management from the University of Baltimore. She resides in Harford County, Maryland with her husband and two adult children.


Warren "Benton" Ames

Board Member

Warren “Benton” Ames is a car guy from ‘day one’. He currently does research work for ExxonMobil Corp. He also fights back against the disease that claimed a loved one, in hopes of providing the help that wasn’t there when his own children needed it.

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Jodi O'Donnell-Ames


Jodi O’Donnell-Ames is a certified teacher, writer, massage therapist, member of Union Fire Co. and Rescue Squad and tireless advocate for those affected by ALS (Amyotrophic Lateral Sclerosis). She lives with her husband, Benton, and their three amazing children in Titusville, NJ.

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Board of Advisors

Sarah Trott

Board Member

Sarah is a journalist, podcaster, 'The Bachelor' contestant, and ALS advocate. Sarah's father, Tom, was diagnosed with ALS in 2016 and passed away on October 15, 2021 after an incredibly inspiring and courageous battle. Sarah shares her family's experiences, as well as her reflections and advice on her social media platforms, podcast, and Sarah's Caregiver Community Facebook group. Sarah leads weekly, virtual small groups for young, female caregivers, and she works with various local and national ALS organizations to advocate for research and caregiver support. Sarah is also an associate editor and contributor at, an industry-leading, digital media platform for all things relating to caregiving support, wellness, and mental health resources. 

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Keiren Dunfee

Advisory Board Member

Dr. Keiren Dunfee is a Client Communications Graphic Designer with Corporate Strategies and Keiren Dunfee Graphics. She is proud to be captain O'Donnell-Ames, one of the top fundraising teams at the ALS Out and Back Run in Philadelphia.

Dr. Ron Suzuki, M.D.

Advisory Board Member


Ron is a family practitioner and has offices in Pennington and Plainsboro, NJ. He is also an acupuncturist. He is affiliated with Robert Wood Johnson Hospital. Ron has volunteered at Camp HLC and is happy to be part of the Board!

Jack Tatar

Advisory Board Member

Jack Tatar is managing partner of Doyle Capital, a venture fund that invests in early stage companies in the “transformative technology” sectors of crypto assets, blockchain, distributed computing, AI and others. He’s the co-author of the current best seller, Cryptoassets: The Innovative Investor's Guide to Bitcoin and Beyond (McGraw Hill, 2017) and the first book published on Bitcoin, What's the Deal with Bitcoins? (2013) as well as books on retirement including Safe 4 Retirement: The Four Keys to Your Safe Retirement.

John Heller

Advisory Board Member

John Heller is a self-employed business owner and Founder of POINTE PROPERTIES, L.L.C., a Real-Estate investment and renovation company.  Previous owner of the Riverton Health & Fitness Center, and utility Executive with EXELON CORPORATION/PECO ENERGY COMPANY.  

Heidi Brim

Advisory Board Member

Heidi is an accountant with Princeton Financial Group, LLC, and has over 25 years of experience working with small businesses, including several non-profit organizations. “I am honored to have been part of HLC since 2013, to watch it grow, and to work with all these incredible individuals.”    


Jamie Bachrach

Advisory Board Member

Jamie is a senior communications specialist with Hollister Incorporated leading internal communications. She has a strong background in communication and administration, event planning and fundraising. After volunteering at the first Camp HLC held in Chicago in the fall of 2019, Jamie committed to making a larger impact with HLC. Jamie has experienced the loss of several friends to ALS and is determined to help HLC reach more families through their programs.

Linda Cassidy
Advisory Board Member

Linda Cassidy is a self-employed Environmental Health and Safety Consultant.  She has 20 years of safety experience, working mainly with laboratories and healthcare facilities. She has also worked with various non-profit

organizations. Linda is thrilled to be a part of Hope Loves Company!


Charnelle Bain

Advisory Board Member

Charnelle & her husband have been the proud owners of Simply Elegant Events (event planning /catering) Company for many years. She is the mother of two beautiful daughters. After working for the Mental Heath Association of Essex County for 14 years. She has now transitioned  into a full time caregiver role in 2019 to her husband that has been living with ALS for the past 3 1/2 years. 

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Christine (O'Shea) Powers

Advisory Board Member


Christine (O'Shea) Powers is a Boston native now living on the South Shore in Braintree with her husband (of 23 years) Tom Powers and Fur Baby Austin Powers.
She is a retail buyer by day and by night is a fitness instructor (4 nights a week) with many hobbies. Balancing a work life balance is extremely important to her.

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Claudiu Leverenz

Advisory Board Member

Claudiu Leverenz studied information systems at the Technical University of Munich in Germany with exchange studies in the US and Australia. In 2015, during his studies, he started the project Munevo. The company was then founded in 2018 and is dealing with a new type of special steering for electrical wheelchairs which is now based on the use of smart glasses like Google Glass. He has been nominated on Forbes 30 under 30 Europe list, in the category Science & Healthcare.